This
week the topic of my article is one that is very close to home. What is
Asperger’s and how can it impact on learning?
I
am writing this not only from an educator’s perspective, but also as the mother
of a son with Asperger’s. In a way autism has become my specialist subject. I
have not only read widely on the condition, but I have experienced at first
hand, the challenges and the rewards of living with someone with Asperger’s. I
have decided to write this article, as recently a minor celebrity appeared on the
‘This Morning’ television programme with her child, whom she suspected of
having Asperger’s syndrome. During the conversation and in front of her child,
she referred to him as ‘odd’. I found this horrifying. As challenging as
Asperger’s can be, I have never seen it as something negative. I am writing
this therefore, to educate more people about the condition. If Asperger’s
individuals are taught in the correct educational environment, then they can
become very happy and successful.
The National Autistic Society
is a fantastic charity which provides a great deal of support to the families
of children and adults with Asperger’s. They are the first port of call for
anyone who may think that their child is showing signs of Asperger’s. Autism is a spectrum condition. All
autistic people share certain difficulties, but being autistic will affect them
in different ways. According to the charity, Asperger’s is fundamentally
‘a lifelong developmental disability that
affects how people perceive the world and interact with others.’
Individuals with Asperger’s see, hear and feel
the world differently to other people. They have difficulty communicating. It
is important here to explain that there is a significant difference between speaking
and communicating. For example; if you were to meet my son, then you would
think that he speaks very well and you would be very surprised to learn that he
has communication difficulties. However, frequently individuals with Asperger’s,
speak in clichés. They have learned what to say to make people think that they
can communicate. However, in truth they struggle to express their needs and
wishes and social situations cause a great deal of anxiety for them. The role
of the speech therapist is crucial to anyone with Asperger’s. Speech therapists
are incredibly good at being able to highlight the communication difficulties
and to suggest ways to enable the Asperger’s individual to express their needs.
Individuals with Asperger’s may experience
different sensory experiences to others. They can find large rooms incredibly
intimidating. They might struggle with certain smells and textures, as they
experience these differently. Sounds can also cause a great deal of stress to
the individual. This explains how many
individuals with Asperger’s have trouble within the school environment. Schools
are noisy and frequently have large rooms. There are smells such as
disinfectant that can trouble the Asperger’s individual.
One of the most obvious indicators of Asperger’s
lies in their obsessions. These can take the form of an obsession with something
or even show themselves in the form of obsessions over people. Asperger’s individuals may develop an
obsession over a topic and be able to recite every single fact about that
subject. They may find that whenever they feel anxious, they resort to talking
about their obsession. For example: From an early age, my son loved every
single Thomas the Tank engine. He felt safe when he spoke of Thomas. Whenever
he had to face something new that caused him anxiety, he would seek security
from a laminate showing all the Thomas engines. This then led to an obsession
over Dr Who and history. As much as one might consider that these obsessions
are a hindrance, I always saw them as the perfect way to educate my son. He
learnt to read through the Dr Who magazine. Dr Who opened an interest in
history. We could introduce science to him through the Dr. He now writes
scripts about Dr Who and this has been part of his introduction to GCSE English
and creative writing. He even recently won a script writing competition.
For a person with Asperger’s syndrome, just
living in the day-to-day world can be incredibly taxing. They depend on
predictability in a world that is often random. They are constantly surrounded by
other people whose social and emotional reality they don’t truly understand. It
is no wonder some of them are prone to meltdowns. In the case of children,
tantrums or rage attacks often take place either just at school, where stresses
are greatest, or just at home, where the child can let it all out. The
best way to deal with these meltdowns is to try to identify stress triggers and avoid them
if possible in advance.
Most individuals with Asperger’s can be educated
within state schools. However, it is vital that the school is aware of how to
meet their unique needs. In these cases, a diagnosis can be beneficial.
Obtaining a diagnosis can take a very long time and it can be frustrating. To
start the process first seek advice from your GP.
Asperger’s is not necessarily a hindrance to
learning but schools need to be aware of an individual’s unique needs to ensure
that the individual is happy within the school environment and able to make
progress. Some of the difficulties an
Asperger’s individual will experience at school include:
Sensory issues
Organisational difficulties – such as
understanding a new timetable, moving around
Communication issues
Peer group relationship difficulties
Motor skill difficulties – handwriting
Anger management issues
Issues with additional special educational needs
such as OCD and ADHD
With the right support and appropriate guidance, individuals
can do well in main stream settings. I know of many schools who have ‘nurture’
groups. These are where students with additional needs are eased gently into
the demands of a secondary school with a great deal of additional support.
There are some cases when a main stream environment might not
be able to meet the needs of an individual and in this case a specialist school
might be a better alternative. In these cases, schools or parents should consider
requesting an EHCNA from the local education authority. This assessment
involves a process of gathering information from the relevant people or
agencies, including the views, interests and aspirations of the parents and
child or young person. Introduced in September 2014 the
Education, Health & Care Plan or EHCP is a document which
sets out the education, health and social care needs your child or young person
has and the support that is necessary to cater for those needs. Obtaining an
EHCP can be incredibly difficult and frustrating. However, there are many
support groups and legal advisory services such as IPSEA who offer support and
guidance during this lengthy process.
There is nowadays a greater understanding of
Asperger’s. Many well-known people have spoken about the condition and how it
affects their family dynamic. Kathy Lette is an author who has a son, Jules,
with Asperger’s. Jules is now an actor on television and Kathy Lette regularly
writes about the challenges an individual with Asperger’s will face as they
move into adulthood.
Next week Chris Packham, the great naturalist, is
going to present a programme on his own Asperger’s. http://www.chrispackham.co.uk/news/aspergers-and-me This programme will focus on how he experiences the world in a very
different way, ‘with heightened senses
that at times are overwhelming, and a mind that is constant bouncing from one
subject to the next.’
If you require any further information do look
at The National Autistic Society’s website http://www.autism.org.uk/

Comments
Post a Comment